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Make a donation and help fund research for a cure. Debra of america is part of debra international, a worldwide network of national groups working on behalf of all people living with epidermolysis bullosa (eb). Learn about epidermolysis bullosa (eb), a rare genetic disorder, its symptoms, treatments, and personal stories from the eb community at debra of america.
Debra Jo Fondren, circa 1978. News Photo - Getty Images
Explore our mentorship programs, eb nurse educator program, new family advocate program, debra care conference & additional support services. Debra of america offers free programs, personalized support, and trusted online resources to help individuals and families navigate life with eb. Get to know the dedicated team behind debra of america, working tirelessly to support individuals and families affected by epidermolysis bullosa (eb).
For more information or if you have any questions, feel free to contact us at
When there seems to be no way out, there's debra of america, a lifeline for thousands of families living with “the worst disease you’ve never heard of,” epidermolysis bullosa (eb). Learn about debra of america's team working to raise eb awareness, and provide eb support to patients and families affected by epidermolysis bullosa (eb). Please contact debra of america's national office with further questions or concerns At present, there is no specific treatment for eb
Current therapy is directed toward the prevention of skin. No one should face dystrophic eb alone
